I've been so exhausted and sick the last while that I haven't had the energy to sit down and write. I have had a raging sinus infection which has affected my sleep. I'm now working 2 jobs and trying to keep my son's head above water. His neurologist has suggested since the lose of his job that he apply for medical EI and take a few weeks to recover before jumping in to job hunting again. The process takes forever so I'm trying to subsidize the income he doesn't have which translates in to supporting him, paying his rent etc. I've also had to spend time talking him down from the tree. They have put him back on steroids which mess with his head big time. He always falls in to a deep depression and the world becomes a place he doesn't want to be. I keep reminding him he has a place to come home to but he's not ready to give up his new found freedom quite yet.
On a more positive note, he is the first person in the province of Alberta to be subsidized for Tysabri. Thank heaven for that option as there is no possible way on God's green earth I could afford that medication.
The province had decided after Tysabri was back on the market that they were not going to subsidize this one. This was due to the cost of the drug and the fact that they didn't feel that it was proven to be any more effective than Rebif, Avonex, or Copaxone. He has an amazing neurologist and she has managed to convince them that in fact, and especially in Dustin's case, it is not only one of his last options but does show promise in cases such as his where the lesions are in the brain. Once he has finished this round of prednisone and done what ever time she deems necessary to do a wash out, he begins the Tysabri.
We do have angels in our lives and we say thanks for those angels every day. Now all we can do is hope and pray this drug works for him.
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